LGS Foundation 4th annual Wine Fundraiser is on our Events Page
|
The S4 Epilepsy Walk by Bob Lazzari On Sports is on our Articles Page
|
The S4 Event is on our Events Page
|
2012 National Walk for Epilepsy in Washington, DC is on our Personal Stories page.
|
Strike Out Epilepsy 2012 is on our Strike Out Epilepsy page.
|
We wish to thank Gillian Neff for interviewing us on her show 12 on Health
|
 |
| Ken Quick and Gillian Neff |
|
|
Cablevision of Connecticut's 12 on Health with Gillian Neff is a weekly program that addresses various health issues in Connecticut. Gillian Neff's guests for this episode are the Connecticut Epilepsy Advocate Board members Ken Quick and Robert Fiore.
This interview will air on the following dates and times:
• Saturday, February 25, 2012 at: 6:30AM, 10:00AM, 1:30PM and 5:30PM
• Sunday, February 26, 2012 at: 12:30AM, 6:30AM, 10:00AM, 12:30PM, 4:00PM, 10:30PM and 2:30AM (Monday)
The focus of this episode was to make Connecticut's residents along with each of you viewing learn about our annual fund raiser: "Strike Out Epilepsy-2012" and what will be done with the funds raised, Medic Alert and Epilepsy in general through our Organization. By doing so we wish to make more people: "Aware About Epilepsy".
We wish to thank Gillian Neff for her ongoing support of our Organization.
|
Group raises awareness about Epilepsy on CT Style with Teresa LaBarbera
Click the Play icon below to view it:
|
The Connecticut Epilepsy Advocate on CT Style
|
We wish to thank Teresa LaBarbera and Jocelyn Maminta for having us on CT Style. Our interview will air Monday, February 20, 2012 12:30PM but why not watch CT Style every week Monday thru Friday on NEWS 8. If you ever ask: " "Who's Got Your Back? its News 8"
|
 |
| Teresa LaBarbera and Jocelyn Maminta |
|
|
 |
| Bob and Gil Simmons |
|
|
We always say HI to my buddy Gil Simmons - Semper Fi
|
A Great Cause for Epilepsy by Paul 'Jethro' Fiore is on our Articles Page
Connecticut Epilepsy Advocate, Inc. will hold its annual "Strike Out Epilepsy 2012" by Bob Lazzari is on our Articles Page
|
Strike Out Epilepsy 2012 is on our Events Page
|
2012 Sixth Annual National Walk for Epilepsy is on our Events Page
|
"Mighty Mike" Simmel is a member of the Harlem Wizards and the Founder of the "Bounce Out The Stigma Project". Please visit our TV Show Page
|
My history! by Éric Harris is on our Personal Stories Page.
|
Wendy and her husband Anthony Flammia speak about their daughter Gianna. Please visit our TV Show Page
Christina SanInocencio is the President/Executive Director of the LGS Foundation (Lennox Gastaut Syndrome), she speaks about LGS. Please visit our TV Show Page
|
Radio interviews for November is National Epilepsy Awareness Month
|
Connecticut Epilepsy Advocate wishes to thank Mark Kaminski and Dan Zeek for having us on their show Milford Radio. The interview took place at Cafe Atlantique in Milford Connecticut on Wednesday, November 23, 2011.
|
 |
| Mark Kaminski and Dan Zeek |
|
|
For those of you who may not know, Milford Radio is the only show dedicated to Milford Connecticut and the surrounding area. With thousands of listeners, this show has grown into a must listen to program. Please listen LIVE every Wednesday night at 8:00PM.
www.milfordradio.com
|
However if you did miss the interview please listen below on blogtalkradio:
|
Their were also other radio interviews, we were on nineteen stations, each one is listed below along with another blogtalkradio interview.
|
 |
| Renee DiNino and Leila Demetrovits |
|
|
Our thanks go out to my BFF and fellow Italian Renee DiNino at WHCN-FM The River 105.9 FM. Leila and I truly enjoyed doing an interview about November is National Epilepsy Awareness Month along with others things related to Epilepsy. It will air on her show: “My Community Access”. Our interview about Epilepsy and November is National Epilepsy Awareness Month heard Sunday, November 20, 2011.
|
For future reference "My Community Access" airs every Sunday on these stations:
|
We wish to thank John Voket
for having Ken Quick and me on his
award winning public affairs program "For The People". John was kind enough to do the interview
about about
Epilepsy and November is National Epilepsy Awareness Month. This is the sixth year John has helped to
make his many listeners become “Aware About Epilepsy”.
Each week Johns program "For The People" features several segments and announcements focusing on critical issues in our communities; and provides information about the organizations and initiatives that help to address those concerns. Our interview can be heard Sunday, November 20, 2011 on their stations:
|
It will be available on line until
Midnight, Saturday, November 26, 2011
|
 |
| Robby Bridges |
|
|
We want to thank Robby Bridges for having us on his show again. Our interview about Epilepsy and November is National Epilepsy Awareness Month can be heard Sunday, November 27, 2011 on The Robby Bridges Variety Hour on their stations:
|
November is National Epilepsy Awareness Month. Epilepsy is a neurological condition that from time to time produces brief disturbances in the normal electrical functions of the brain. Epilepsy affects more than 50 million people in the world, over 3 million people in the United States and approximately 60,000 people in Connecticut.
|
Christina SanInocencio is the President/Executive of the Director LGS Foundation, she speaks about Lennox Gastaut Syndrome. Please visit our TV Show Page.
|
blogtalkradio with Eric Turcio - Novemeber is National Epilepsy Awarness Month
|
 |
| Erick Turcio |
|
|
We were on Erick Turcios' blogtalkradio show again titled: Epilepsy Awareness News update by Talk with Turcio in Health Tuesday, November 8, 2011. We wish to thank Eric for his ongoing support. Please listen below:
|
Connecticut Epilepsy Advocate: "Epilepsy Stories" Beth and Matt Fox then Hedy Kelley and Frank Piercy are just two sets of the countless number of Parents Dealing with Epilepsy. Please visit our TV Show page
|
Never to be forgotten the story about Kimberley Pierce by Carrie MacMillan is on our web sites Newspaper Stories Page.
|
(Anything listed on our web site as News prior to October 16, 2011 is now on our Newspaper Stories Page)
|
Walking Miles for Epilepsy-2011
|
Walking Miles for Epilepsy-2011 took place on Sunday, September 25, 2011. With the inclement weather we experienced it was worth pushing it up one day to avoid the rain. Special thanks go out to News 12 Connecticut Meteorologist Paul Piorek and NEWS 8 Meteorologist Gil Simmons, the forecast they gave us was right on target.
|
It was held next to Bodie’s Place, it is a community playground located in Milford, Connecticut, at Eisenhower Park for all people, no matter their abilities, ages or interests to enjoy each other and the world around them.
|
We had all of the people
involved in the walk and even a few pooches too. There was food from SUBWAY on New Haven
Avenue in Milford. Soda and water was
donated by PepsiCo in Stratford. Stop
and Shop along with Lowe's, both in Milford donated items too.
|
Photo Album Gallery Place Holder - Please wait while the Photo Album loads.
If the album does not show, please refresh the page to try again.
|
Stew Leonard's in Norwalk, Connecticut donated a $50.00 gift card. The winner of it is a young lady from Norwalk who lives with Epilepsy. Her name is Laura Gibson.
|
We wish to thank the many companies for supporting our walk.
|
It is now official. - "Walking Miles for Epilepsy" will take place on Sunday, September 25, 2011-the very next day. Same time, Same place.
|
Donating blood at the Milford Connecticut Elks club.
|
Epilepsy Stories is now available on YouTube.
Please visit our web sites TV Show page
|
Epilepsy Stories - Premiering on Charter Community Vision 21 TV by Maggie DellaRocco - Griffin is on our Articles page
|
Connecticut Epilepsy Advocates' "2011 Walking Miles for Epilepsy" is on our Events Page
|
On the green in Milford with my buddy Gil Simmons from NEWS 8. Thank you for having me on with you today. It is great that you gave us the time to make people "Aware About Epilepsy. - Semper Fi
|
Our family has two separate stories that will forever be entwined by Lisa Moss is on our Personal Stories Page.
|
I went to the Connecticut Broadcasters Association Blood Drive at WHCN-FM The River 105.9 FM
|
I wanted to give blood so when my BFF Renee DiNino invited me I went to WHCN-FM The River 105.9 FM located on 10 Columbus Boulevard in Hartford, Connecticut. I also met Rachel Lutzker and Joe Aguiar.
|
Gerry Brooks please don't fret.
|
I encourage everyone to go to each of the Connecticut Broadcasters Association Blood Drives being held till June 30. When it comes to giving blood please don't wait for a personal invitation, just go to any location. Blood is needed year round so even if you can't make it to the Connecticut Broadcasters Association Blood Drives from June 27 to June 30 just go to the web site below to register.
|
Connecticut Broadcasters Association Blood Drives will take place June 27 to June 30.
|
The Connecticut Broadcasters Association and the American Red Cross are proud to announce that for the first time ever, radio and television broadcasters across the state as well as ESPN will join together in a coordinated effort to help save lives.
www.redcrossblood.org/ct/cba
Can people with Epilepsy give blood? Believe it or not some of us can. The way you can find out is to check with your doctor first and if you are given the OK to do so contact the American Red Cross and the special number below. You will be asked a series of questions and you will find out in a matter of minutes if you can. If you are able to do so just go to their web site and find a location near you. If you cannot please ask a family member or friend who can to do so.
(866) 236-3276
They look forward to welcoming hundreds of blood donors each day along with family and friends to participate in a chance to make a difference in the lives of others by donating blood before the holiday weekend and join with Connecticut radio and television personalities to help save lives. The need for blood does not take a vacation. Please make an appointment to donate blood today.
|
Prescription Savings
The Depakote Co-Pay Card or Coupon can reduce out-of-pocket costs for eligible patients.
|
My Daughter Lexy by Felicia Harris is on our Personal Stories Page.
|
We wish to thank Gillian Neff for interviewing us on her show 12 on Health
|
Leila Demetrovits and Gillian
Neff
|
Cablevision of Connecticut's 12 on Health with Gillian Neff is a weekly program that addresses various health issues in Connecticut. This aired on June 4 & 5, 2011. Gillian Neff's guests for this episode Connecticut Epilepsy Advocate Board members Leila Demetrovits and Robert Fiore. For the record we were limited on time so I would like to point out one thing. I did have one major seizure after the surgery and a few during some of the weaning process I went through but not all of them. They are trial and error but since the weaning process has ended I have been seizure free for over 3 and 1/2 years. We are limited on time for the interviews. Naturally, the focus of this episode was to make Connecticut's residents along with each of you viewing learn about our Organization and this to become more "Aware About Epilepsy" and the approximately 60,000 people in Connecticut living with epilepsy.
|
Strike Out Epilepsy - Connecticut Epilepsy Advocate, Inc. hosts first annual bowling fundraiser at AMF Milford Lanes to raise awareness about epilepsy is on our Articles page
|
The Connecticut Epilepsy Advocate’s "Strike Out Epilepsy" fundraiser was a success.
|
We are happy to say we had a better than expected turn out for our first annual Strike Out Epilepsy fundraiser. We had people from many parts of Connecticut and the kids who were at the lanes with the gutter guards did better than some of the adults.
The biggest turnout was the three teams from Super Stop & Shop - Ronda’s Hotties, Team Brenna and Generation XXX.
We have some photos below from both locations and we wish to thank all who participated in the first of many Strike Out Epilepsy fundraisers to come as well as our sponsors and donors for their generosity.
Our gratitude also goes out to Sue Bruzinski, Louise Harris and Marty Levine for helping out at the event.
|
Photo Album Gallery Place Holder - Please wait while the Photo Album loads.
If the album does not show, please refresh the page to try again.
|
Ken Quick and I did an interview on Milford Radio
|
Milford Radio was created to keep you informed of everything going on in Milford! This weekly online podcast will spotlight the events happening in Milford, the people, the places, the shops, the restaurants, and everything else you ever want to know about Milford... probably some things that you didn't want to know as well.
MilfordRadio.com is a weekly LIVE online radio show spotlighting the weekly events of Milford, CT, interviewing the people making it happen, discussing the local news, hot topics, dirty laundry, and much more!
|
Mark Kaminski wth Dan Zeek
|
We wish to thank Mark Kaminski the creator and host of Milford Radio along with Dan Zeek for having Ken Quick and I on.
MilfordRadio.com www.milfordradio.com
|
You can hear the interview on their web site or on the Blog below
|
Bowl-a-thon aims to 'strike out epilepsy' is on our News page
|
NBC Connecticut did a story about photosensitive Epilepsy
|
Jacquie Slater from NBC Connecticut contacted me in early May and told me she was doing a story on 3D televisions and the warnings that come with them about health effects. She also said: I am particularly looking to speak to someone who has photosensitive Epilepsy, or someone who has had an experience while watching 3D technology or even television in general. Naturally, the first person that came to mind was my friend Aprile Johnson. So we did a conference call and the interview was taped the next day.
|
Photo Album Gallery Place Holder - Please wait while the Photo Album loads.
If the album does not show, please refresh the page to try again.
|
Our thanks go out to Jacquie Slater and cameraman David Michnowicz along with the staff at NBC Connecticut. You know what they say: "We are Connecticut".
|
Connecticut Epilepsy Advocate on the Italian House Party with John LaBarca
|
John LaBarca and I have been friends for over 30 years. Even though I have a sore throat I went to the Italian House Party today to speak about: "Strike Out Epilepsy" and he told me: Bobby, it's going to be short because it's a busy day today. Frankly, I did not mind because some promotion of Epilepsy is better than none.
|
The day was busy because he had two guests. Nick Apollo Forte, who many of you know both as a singer and from the movie Broadway Danny Rose. It was good to see Nick again.
|
However, it was not long after that the second guest arrived. José Feliciano, his wife Susan along with their sons Jonathan and Michael. It was great to meet José and his family.
|
His son was kind enough to
take a photo of us together.
|
You can listen to the Italian House Party every Sunday 9:00AM to 12:00PM on W-STC 1400AM or W-NLK 1350AM plus you can go to their web site and click on Listen Live: www.wstcwnlk.com
Our thanks go out to Jill the stations Board Operator along with Joanie and Tony Chiucchini and least we forget Johnny LaBarca.
|
The LGS Foundation will be hosting their third annual wine-reception fund raiser see our Events Page.
|
Yes I still have seizures by Mickey Naschke is on our Personal Stories Page.
|
Renee DiNino the Director of Community Affairs & Programming at Clear Channel Radio in Connecticut was kind enough to interview the Board members of the Connecticut Epilepsy Advocate on her show: “My Community Access”. The interview aired Sunday, May 1, 2011. If you missed it just click on the link below and enjoy the show. It runs from: 12:05 to 18:05
|
Register now for "Strike Out Epilepsy" This is one of Connecticut Epilepsy Advocate's annual events to build Awareness about Epilepsy. You can have up to six people per lane. Pizza and soda will be served at each lane. You will enjoy hours of bowling and help people with Epilepsy. You can register on line or send your "Strike Out Epilepsy" payment and registration forms before May 13, 2011 to: Connecticut Epilepsy Advocate, Inc. 20 Salem Walk Milford, CT 06460-7132 www.active.com/donate/CTEA
|
Connecticut Epilepsy Advocate will be on West Hartford Community Television
|
Connecticut Epilepsy Advocate will be on the West Hartford Community Television show: Around Town on the following dates and times:
* May 1, 2011 - 7:00PM
* May 2, 2011 - 7:00PM
* May 4, 2011- -7:30PM
* May 5, 2011 - 7:00PM
* May 6, 2011 - 7:30PM
* May 7, 2011 - 7:00PM
If you are not in their viewing area you can see the interview on their web site
www.whctv.org/index.php?option=com_content&view=article&id=1691&Itemid=74
It will also be available on ATT Channel 99 in the same cities and towns and thought-out the state on the same dates and times just look for West Hartford Community Television.
|
If you missed the Connecticut Epilepsy Advocate on the Charter 21 Community Vision show Local Edition it is now on YouTube.
|
Going Mobile: Smartphones and other mobile devices can provide real‐time information and assistance for people with neurologic problems by: Amy Paturel M.S., M.P.H. is on our Professional Stories page
|
I suffered Epilepsy throughout my childhood by Eddie Powell is on our Personal Stories Page.
|
Connecticut Epilepsy Advocate will be on the Charter 21 Community Vision show Local Edition.
|
Phyllis Cortese is the host of the Charter 21 (CTV-21) Community Vision show Local Edition. Phyllis has done countless interviews with local organizations and leaders. She is a special part of CTV-21. She was kind enough to interview Ken Quick and me. We truly thank her for having us on her show. We also wish to thank Community Access Supervisor Greg Van Antwerp and his entire staff for their support of our organization along with those living with Epilepsy.
|
The show will air on the following dates and times:
* April 17, 2011 - 4:00PM
* April 19, 2011 - 8:00PM
* April 24, 2011 - 4:00PM
* April 26, 2011 - 8:00PM
Local Edition can be viewed by the residents of: Trumbull, Monroe, Newtown, Brookfield, New Fairfield, Sherman, Bridgewater, Roxbury, New Milford, Kent, Southbury, Woodbury, Bethlehem, and Washington. It will also be available on ATT Channel 99 in the same cities and towns and thought-out the state on the same dates and times just look for Charter 21.
|
2011 National Walk for Epilepsy in Washington, DC by yours truly is on our Personal Stories Page.
|
A new date has been set for "Strike out Epilepsy" see our Events Page.
|
Become part of the process to help a Bill pass for people with Epilepsy.
|
For over five years there has been a Bill with a different Title and Number to help people with Epilepsy receive the proper medication they need. The intent of the Bill is to prohibit a pharmacy, upon the initial filling or renewal of a prescription for the treatment of epilepsy or prevention of seizures, from substituting an antiepileptic drug or formulation of an antiepileptic drug for the prescribed drug without first obtaining the consent of the patient's prescribing practitioner to make such substitution.
As antiepileptic drug substitution may have adverse effects, the best way to help pass this long overdue Bill is have the citizens of Connecticut get involved and become a part of the process.
Below is step by step information on how to do so.
The web site is: Connecticut General Assembly
www.cga.ct.gov
At the top of the page you will see Quick Search. Where it says Number please type in: 5610 and then click on GO.
The present bill is: House Bill 5610-An Act Concerning The Duties Of A Pharmacist When Filling A Prescription Used For The Treatment Of Epilepsy Or Prevention Of Seizures.
Here is the Bill History (in reverse chronological order)
Date Action Taken:
* March 7, 2011 a Public Hearing was scheduled to take place on March 11, 2011
* February 16, 2011-2/16/2011 Referred to Joint Committee on Public Health
* February 15, 2011-2/15/2011 Drafted by Committee
* January 31, 2011-1/31/2011 (PH) Vote to Draft
* January 20, 2011-1/20/2011 Referred to Joint Committee on Public Health
Here are some other helpful tools:
You should find the person who serves your city or town and the best way to do so is on the link titled: State of Connecticut Districts - Find Representative, Senator and Congressperson
www.cga.ct.gov/maps/Townlist.asp
How to find a Committee and it Members. Click on the Connecticut General Assembly home Page: www.cga.ct.gov
On the top of the page you will see: Committees A - H & I - Z. Just click on I - Z and scroll down until you see Public Health. If for some reason you do not see it here is the link:
Public Health Committee: www.cga.ct.gov/ph/
Earlier you found who serves your city or town so please see if they are a Public Health Committee Member. Even if they are not you should contact your State Representative and your State Senator. Then briefly introduce yourself and let him or her know about Bill 5610 and request their support along with their mentioning your interest in it to the Public Health Committee Members.
Do you know you can track a Bill? It is easy and recommended. Just go back to the Connecticut General Assembly page: www.cga.ct.gov
Then on the top right you will see Bill Tracking. Click on it, and set up an account.
It will then ask to type in the Bill Number you wish to track. The Connecticut General Assembly online Bill Tracking System will keep you informed because this application allows you to track legislative activity on bills.
Please continue to follow the progress of this Bill and do all you can to contact the many Committee Members and request them to please support this Bill. Together we can make a difference.
|
Robert Fiore - Connecticut Epilepsy Advocate Wears Purple by Maggie Griffin is on our Articles page
|
Do you know someone living with seizures? Well, you're about to meet me by Tonya Heathco is on our Personal Stories Page.
|
NEWS 8 Weekend with Sara Welch and everyone at NEWS 8
On Sunday, February 13, 2011 I went to NEWS 8 to watch a live broadcast of the news along with the taping of some promos. Not only did I enjoy seeing my friend Sara it was great to meet so many other people that put their hearts into what they do. I have been in a few TV studios and what you see at home or at work on the screen is a fraction of the dedicated work these people do on camera along with production, directing, editing and much more. I truly appreciated the invitation from my friend Sara. She and her co-workers treated me so well. Each of them are great people so I hope everyone looking here will know there is so much work done. I say to those of you here in Connecticut press the Number 8 on your remote, enjoy the show.
Thank you each and every one of you at NEWS 8. Remember, for "Coverage You Can Count On" you can "Count on 8" so when asked: "Who's Got Your Back?" it is "News 8".
|
Photo Album Gallery Place Holder - Please wait while the Photo Album loads.
If the album does not show, please refresh the page to try again.
|
Please scroll down this page to read about the interview titled: Epilepsy: Help and Hope on Lifetimes Health Corner
|
This topic is so complex by Tracey Alderson is on our Personal Stories Page.
|
My son Justin has Migrating Partial Epilepsy of Infancy by Becky Dymen is on our Personal Stories page
|
2011 Fifth Annual National Walk for Epilepsy is on our Events Page.
|
The interview titled: "Understanding Epilepsy Disorder" will be on television.
The interview titled: "Understanding Epilepsy Disorder" which was filmed at NHTV in North Haven, Connecticut on: "OneWorld Progressive Institute, Inc." presents "21st Century Conversation" Hosted and Produced by N'Zinga Shani.
It will air Tuesday, January 11, 2011 at 8:00PM. It will air again on Tuesday, March 1, 2011 and Tuesday, June 28, 2011. If you reside in the following Connecticut cities and towns: Bridgeport, Fairfield, Milford, Orange, Stratford and Woodbridge it will be on Cablevision Channel 78.
It will also be available on ATT Channel 99 in the same cities and towns on the same dates and times.
If you do not reside in the cities and towns listed above it will have different air dates depending on the cities and towns just look at the schedule on Channel 99.
If you reside in Naugatuck, Beacon Falls, Bethany, Oxford, Seymour, Ansonia, Derby and Shelton it will be on Comcast of Seymour Channel 10. It will air Tuesday, March 1, 2011, Tuesday, April 26, 2011 and Tuesday, July 5, 2011 at 7:00PM.
These are the only dates, times and channels we have as of now. Please call your Public Access Station and see if they carry "21st Century Conversations" and if they do not just request that they carry "21st Century Conversations".
Please click on the link below for a preview of the show:
www.youtube.com/watch?v=nP7HgfqGToQ&feature=player_embedded#!
|
Ciara's Butterfly Bash 2011 is on our Events Page.
|
A Public Service Announcement about Epilepsy by Anne Kissel composed at the University of New Haven. Our thanks go out to both Anne Kissel and 88.7-FM W-NHU Program Director Kristen Bayusik
|
The two part interview for November is National Epilepsy Awareness Month on W-PLR-99.1 FM and W-EZN-Star 99.9 FM is on our Events Page
|
Patient Savings Programs for help paying for medications
I have a very good friend Debbie who is part of the Epilepsy Support Group here in Milford, Connecticut.
Medication costs were spoken about. Leave it to Debbie, she said to me: Last night's meeting triggered me to look up a few particular medications assistance plans that can be shared with people in our group and/or put this information on your website.
|
With that said you can contact the drug company that makes your medication and ask what programs they offer for free or a set price. Thank you Debbie, the information you sent is here for all to review.
|
England Marketing Research is doing a focus group
|
New England Marketing Research is looking for people who suffer with Epilepsy or a seizure disorder to do a 1 hour focus group in Norwalk Connecticut on Wednesday, November 17 or Thursday, November 18, 2010. They will give you $125.00 cash for your time and opinion.
If you are interested in this opportunity please call Lori Miller at: (281) 812-6457
or email: lmresearch62@aol.com
New England Marketing Research, Inc.
200 Connecticut Avenue
Fourth Floor, Suite 9
Norwalk, CT 06854-1907
|
Renee DiNino interviewed the Board members of the Connecticut Epilepsy Advocate
|
Renee DiNino the Director of Community Affairs & Programming at Clear Channel Radio in Connecticut was kind enough to interview the Board members of the Connecticut Epilepsy Advocate. The interview from the “My Community Access” can be heard Sunday, November 7, 2010 on these stations and times:
|
 |
| Turn your clocks back one hour |
|
|
W-TNH Health Reporter Jocelyn Maminta was kind enough to interview us on NEWS 8 Connecticut Style. Jocelyn Maminta brings health issues and medical breakthroughs to the forefront of today's news. The interview aired Wednesday, October 27, 2010.
Click the Play icon below to view it:
|
Lazzari’s Sports Roundup story about our "Walking Miles for Epilepsy” is on our Articles Page
|
Her name is Marissa by Tammy Greathouse is on our Personal Stories page
|
Walk raises epilepsy awareness is on our News page
|
Epilepsy You're Not Alone, both her book title and her own story by Stacey Kaplanis Chillemi is on our Personal Stories page.
|
First Annual "Walking Miles for Epilepsy"
The Connecticut Epilepsy Advocate is proud to announce its:
First Annual "Walking Miles for Epilepsy" Wednesday, September 15, 2010.
Robert Fiore, the President and Founder will be starting 8:00AM at the Washington Bridge in the Devon section of Milford
|
and walk along U. S. Route 1 to The University of New Haven.
|
This year's donations will be used for the The Yale Epilepsy Program.
|
The Yale Epilepsy Program provides promising options for many adult and pediatric patients with epilepsy. Internationally known for clinical excellence and innovative research, this program was one of the nation's first and has evolved into one of the most active and advanced in the world.
Please make checks payable and sent to:
Connecticut Epilepsy Advocate, Inc.
20 Salem Walk
Milford, CT 06460-7132
or click on the Donations tab.
The Connecticut Epilepsy Advocate, Inc. is a 501 (c) (3) Non-Profit Organization. Because we are Connecticut's latest independent organization whose goal is to make people "Aware About Epilepsy" we will handle a very broad-based realm of responsibility.
|
Iain, you are my Hero Every Day by Danielle Guerard is on our Personal Stories page.
|
Yale Study Could Help Us Understand Brain's Electrical Field By William Weir is on our Articles page
|
Mysterious and misunderstood By Christina Hennessy is on our News page
|
Patients taking the antiepileptic drug ZONEGRAN needed for important survey - $50 paid
|
Patients taking the antiepileptic drug ZONEGRAN®(zonisamide) are needed to participate in assessing the ZONEGRAN drug safety program. Eligible patients or their caregivers will complete a 15-minute internet or telephone survey and will be paid $50 for completing the survey. Patients and caregivers may only take the survey once. For more information and to see if you are eligible to participate, please contact BioTrak at (866) 866-5856
support@biotrak.com
|
Having the Tuberous Sclerosis Complex By Amy Butler is on our Personal Stories page.
|
Interviews about Epilepsy on the Lifetime show Health Corner with Joan Lunden
|
If you missed the Lifetime show Health Corner with Joan Lunden, the interview done by Sara Welch can be viewed by clicking on the link below.
Scroll down to show 717: June 20, 2010
The show is titled - Epilepsy: Help and Hope
http://healthcorner.walgreens.com/?twp=2&w=t#video_top
|
Interviews about Epilepsy on the Lifetime show Health Corner with Joan Lunden
|
We are proud to announce there will be interviews about Epilepsy on the Lifetime show Health Corner with Joan Lunden, which is brought to you by Walgreens. It will air on Sunday, June 20, 2010 at 9:30AM. Please check your local listing. Health Corner, a weekly series sponsored by Walgreens, focuses on health issues important to women.
Health Corner also includes real people's touching stories, medical breakthroughs from coast to coast, "Kids' Corner", about your child's mind, body and spirit, and "That Certain Something", focusing on health, style and beauty.
The interview will include Lori and Liam O'Driscoll, who talk about their beautiful daughter Ciara lives with Dravet Syndrome, Dravet syndrome, a rare and catastrophic form of Epilepsy beginning in childhood, and related conditions. Doctor Kenneth P. Vives, Assistant Professor of Neurosurgery and Pediatrics Director at The Yale University School of Medicine and me. Each of us were interviewed by Sara Welch. Sara along cameraman Bruce and sound man Bud were great to all of us and doing these interviews truly showed each of them how Epilepsy affects so many lives. The interviews are brief but compelling. So please make your family members and friends Aware about this and watch it. Remember to set up your VCR or DVD recorder so you can see it again and again. Speaking of seeing it again, you will be able to do so on Sunday, August 22, 2010, same time and same station.
Our heartfelt thanks go out to Joan Lunden and her staff members along with Sara Welch, cameraman Bruce and sound man Bud.
|
Photo Album Gallery Place Holder - Please wait while the Photo Album loads.
If the album does not show, please refresh the page to try again.
|
Photo Album Gallery Place Holder - Please wait while the Photo Album loads.
If the album does not show, please refresh the page to try again.
|
The Story of Daniel Dougherty By Daniel's Mom and Him is on our Personal Stories page.
|
The EpilepsyAdvocate.com 2010 Take Charge Tour will be in Milford Connecticut
|
EpilepsyAdvocate.com is proud to announce their 2010 Take Charge Tour will take place Monday, June 14, 2010 at Milford Hospital. The Special guest speakers will be Doctor Peter J. McAllister who is with Associated Neurologist of Southern Connecticut.
|
Doctor Peter J. McAllister
|
Along with Rick P. Rick is one of the latest members of EpilepsyAdvocate.com.
To register please call: (866) 865-7305 - The registration form will be on EpilepsyAdvocate.com soon so please register as soon as possible.
|
The interview with Greg Grunberg and Doctor Brien J. Smith about Epilepsy
|
The interview with Greg Grunberg and Doctor Brien J. Smith, a neurologist and Medical Director of the Comprehensive Epilepsy Program at the Henry Ford Hospital in Michigan took place on Friday, April 30, 2010.
Greg is a long time spokesperson; advocate and supporter of Epilepsy because of his son Jake who lives with Epilepsy. Greg and Doctor Smith have been so helpful in making people Aware About Epilepsy. Please click play. After viewing it please remember to "Talk About It".
|
Doctor Brien J. Smith and Greg Grunberg
This interview and video is courtesy of Epilepsy Advocate. To learn more please visit: www.EpilepsyAdvocate.com
|
The Maggie's Corner article titled: The Face behind Connecticut Epilepsy Advocate Robert Fiore is on our Articles Page.
The BRAIN-THUNDERS.com article titled: The true definition of an Epilepsy Advocate is on our Articles Page.
|
"I was Misdiagnosed...I NEVER had Epilepsy." By Brooke Cahill is on our Personal Stories page.
|
"My ultimate wish is that LGS will one day become a disorder of the past." By Christina SanInocencio is on our Personal Stories page.
|
"Brain surgery was out of the question so the only option I had left was the Vagus Nerve Stimulator." By Heather Mullins is on our Personal Stories page.
|
2010 National Walk for Epilepsy in Washington, DC by yours truly is on our Personal Stories Page.
|
"My story begins in 1959,..." By Alison Pinsley is on our Personal Stories page.
|
A Stormy Journey of Epilepsy By Ginny Miller is on our Personal Stories page.
Haley's Story By Lisa Oelmann Smith is on our Personal Stories page.
"I do not remember the seizure I had..." - By Cheryl Lynn Becklin is on our Personal Stories Page.
Here Is My Story By Melissa Brauninger is on our Personal Stories Page.
Third Annual Kimberley Piercy Memorial Pasta Dinner is on our Events Page.
Tina's Life By Laura Peck is on our Personal Stories Page.
The New York Times article titled: Patient Voices: Epilepsy is on our Articles Page.
Information about the 2010 Fourth Annual National Walk for Epilepsy is on our Events Page.
Lori O' Driscoll and her daughter Ciara who has Dravet Syndrome were on W-TNH for the Make-A-Wish Foundation. One local gym did some heavy lifting for a great cause. For the second year, Crossfit in Milford held its Fittest Person in Connecticut challenge to raise money for the Foundation.
David Julian's Story and Battle with Epilepsy is on our Personal Stories Page.
You can read the ARTICLE on my web site: Faces of Epilepsy By CURE (CITIZENS UNITED for RESEARCH in EPILEPSY) - Gianna's Story.
Sara-Elizabeth: It's Not Who I Am is on our Personal Stories page. Yes, Sara-Elizabeth and Sara Harris actually know each other.
Lexie for Sarah and Kimberley Piercy's Story are on our Personal Stories page too.
Support Groups
If you go to the Support Groups section of my web site you will see six of them listed. Unfortunately the one in Farmington is not operating at this time and hopefully it will be once again in the near future.
With that said, please let me offer my personal opinion.
Since Connecticut has eight Counties, it would be great if there were two Support Groups in each County. If you are interested in running a Support Group, you will be helping not only the approximately 60,000 people here in Connecticut with Epilepsy, you will be helping their families and friends too. Please contact The Epilepsy Foundation of Connecticut and "Talk About It" with them. They can be reached at: (800) 899-3745
CVS/pharmacy in Massachusetts is partnering with Epilepsy Advocate to bring you this FREE event. More information is available on our events page.
The November Is Epilepsy Awareness Month interview that aired on W-PLR-99.1 FM and on W-EZN-Star 99.9 FM is available on our events page.
In America November is Epilepsy Awareness Month
In America November is Epilepsy Awareness Month. More than 50 million people worldwide have Epilepsy.
Epilepsy is a neurological condition that produces brief disturbances in the normal electrical functions of the brain that can cause people to have seizures. Epilepsy affects more than 3 million people in the United States.
Epilepsy is non-discriminatory. It affects any age group, gender, race or ethnicity.
In Connecticut approximately 60,000 people have Epilepsy. 1 in 10 people will have some type of seizure. Research to find a cure for this sometimes debilitating disease is ongoing.
|
Self Expression:
There is a singing and comedy team called The Gaylords comprised of Ron Gaylord and Burt Holiday. Like them my heritage is Italian which we are very proud of. Burt has said: Ronnie, he was a genius.
Ronnie and Burt were on a flight in 1991 and with the knack that Ronnie had he composed a song, it is a beautiful song titled Proverbs and here is one line from Proverbs: "Youth is like rose, it blooms a while and then, it withers and it dies and it won't return again."
The definition of my family name Fiore is Flower. Even though I am not a rose, I have bloomed and yes someday I will die but before doing so I want to perform the literary definition of bloom: Health, Energy and Attractiveness. I want to take my improved Health and use the Energy from that to Attract others so we can raise Awareness about Epilepsy.
Robert A. Fiore,
Connecticut Epilepsy Advocate
|
|
|
