Helping Those With Epilepsy Through Awareness
Many things seen on our website may seem conventional, and might even be taken for granted. However, to the many living with epilepsy, those same things are unconventional. How so, you ask? Well, many (but not all) people living with epilepsy cannot work, they cannot drive, and they do not know about public transportation available to them. Many cannot afford to pay for their medication. They even have trouble finding a neurologist.
There are MedicAlert bracelets and wrist chains that can tell an EMT, doctor or even a stranger you have epilepsy. We have even designed what we call an I.C.E. Sheet (In Case of Emergency). These items can be extremely helpful. Trust me, I know from experience that when you have a seizure, you probably cannot speak, and so those around you will not know what is happening.
Those are just a few of the many things you will find addressed on this website and by this organization.
The Connecticut Epilepsy Advocate was founded on November 11, 2009, along with this official website. We encourage you to view the contents, and if you, your family, or anyone you know is living with epilepsy, we know you will find this to be a valuable resource.
Learn More About CONNECTICUT Epilepsy Advocate
There is a singing and comedy team called TheGaylords comprised of Ron Gaylord and Burt Holiday. Like them, my heritage is Italian, which we are very proud of. Burt has said: Ronnie, he was a genius.
Ronnie and Burt were on a flight in 1991 and with the knack that Ronnie had, he composed a song, it is a beautiful song titled Proverbs and here is one line from Proverbs: "Youth is like a rose. It blooms a while and then it withers and it dies and it won't return again."
The definition of my family name Fiore is flower. Even though I am not a rose, I have bloomed and yes, someday I will die, but before doing so I want to perform the literary definition of bloom: health, energy and attractiveness. I want to take my improved health and use the energy from that to attract others so we can raise awareness about epilepsy.
Robert A. Fiore,
Connecticut Epilepsy Advocate