The S4 Epilepsy Walk Event
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| Sarah Morgan Fradkin |
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The S4 Epilepsy Walk, Dinner and Silent Auction will be a memorable day for everyone involved. Registration and check in will begin at 1:04PM on Saturday June 8, 2013. All of the information about the S4 Epilepsy Walk, Dinner and Silent Auction is available on their web site:
www.s4epilepsywalk.com
Please pre-register by clicking on the Register Here:
www.cureepilepsy.org/s4
The 2.74 mile walk starts and ends at Ballantine Park and will take us through the beautiful town of Southbury, CT. The fun continues once the walk is finished. There is a tentative schedule of events below. We are hoping for a good old fashioned day at the park with games, food, music and socializing with family and friends. Bring a blanket to lay out in the sun or bring your tennis rackets and play for fun.
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Tentative Schedule (Rain or Shine)
1:04: Register, receive wristband and S4 gear. Sign up to win a car. Raffle tickets.
2:24: S4 Video. Sarah Welcome and National Anthem.
2:44: 2.74 mile walk begins.
4:00 - 8:04: Enjoy Family Time & Get in the Game with Tennis, Volleyball, Horse Shoes, Bocce, Basketball, Kick Ball, Junk Ball
4:17: Silent Auction Begins
4:34 - 6:34: Basketball shots to win a car (courtesy of County Line Nissan), Golf putting contest to win prizes (courtesy of Metro Grass)
5:44: Dinner
6:44: Ball Drop
7:04: Dessert
7:17: Silent Auction closes
7:44: Closing Announcements
8:04: Where will the fun continue?!?
Please make all checks payable to S4 Cure Epilepsy and sent to:
S4 Cure Epilepsy
PO Box 521
Southbury, CT 06488-0521
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Walk for a Brighter Tomorrow
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Join The Family Resource Network and its affiliates as we raise awareness and dollars to support existing programs and expansion projects. This will be a fun filled day for families, friends and community partners to walk in support of their loved ones. The walk will take place Saturday, May 11, 2013 at The Great Lawn, Long Branch, NJ
http://familyresourcenetwork.donordrive.com/index.cfm?fuseaction=donordrive.home
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Ciara’s Butterfly Bash 2013
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| Ciara’s Butterfly Bash |
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The Dravet Syndrome Foundation presents Ciara’s Butterfly Bash. A Benefit for Children with Dravet Syndrome is an annual signature event where funds are raised for research while honoring an individual or group of professionals who have gone above and beyond in the field of Dravet Syndrome and related Epilepsies. It will take place on Saturday, March 23, 2013 - 6:30PM to 11:30PM at the Hyatt Regency Greenwich 1800 East Putnam Avenue in Old Greenwich, Connecticut
For full information please click here: Ciara’s Butterfly Bash
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| Strike Out Epilepsy 2013 |
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Get your calendar and mark this date:
Sunday, April 14, 2013
12:00 Noon to 3:00 PM
Join the Connecticut Epilepsy Advocates'
"Strike Out Epilepsy"
This is one of annual events the Connecticut Epilepsy Advocate
will hold to make people "Aware About Epilepsy".
You can have up to six people per lane. Pizza and soda will be served at each lane. You will enjoy hours of bowling and help people with Epilepsy, their family members and friends living with Epilepsy.
Join us at:
Milford Lanes
1717 Boston Post Road Milford, Connecticut
General Donations of any amount are truly appreciated.
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Entry fee: $30.00 per person
Why not sponsor a lane?
There are two levels of Sponsorship Banners to chose from
that will be displayed above the Bowling Lanes
Regular: $200.00
Platinum: $300.00
Registration Forms, Flyers and Sponsorship Banners
are available below as a PDF.
Sponser Forms must be submitted no later than
Monday, March 25, 2013
You can get a registration form on line.
Both it and your payment can be mailed directly to us
or
it can be sent via PayPal on our Payments & Donations page.
All registrations must be made no later than March 29, 2013
www.ct-ea.org/paymentsdonations.html
Plesae send Registration and Payment to:
Connecticut Epilepsy Advocate, Inc.
20 Salem Walk
Milford, CT 06460-7132
Please submit registration and payment no later than
Friday, March 29, 2013
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2013 Seventh Annual National Walk for Epilepsy
The National Walk for Epilepsy® is a family oriented, noncompetitive walk in our nation's capital to raise awareness and funds to continue the fight to stop seizures, find a cure and overcome the challenges created by epilepsy. Help make a difference by registering today.
Please join everyone on the National Mall in Washington, DC on Saturday, April 20, 2013 and enjoy a morning full of activities for the entire family.
Pre-Walk Schedule:
Friday, April 19, 2013
10:00 AM - 5:00 PM
T-SHIRT PICK-UP and LATE REGISTRATION
Marriott Metro Center
London I and II Rooms
775 12th Street, NW
Metro: Metro Center (Blue, Orange and Yellow lines)
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Walk Schedule:
Saturday, April 20, 2013
7:30 AM - 9:00 AM Late registration
14th Street and Jefferson Drive - adjacent to the National Mall
8:30 AM Pre-Walk Rally (Stage on the National Mall)
9:00 AM National Walk for Epilepsy begins
12:00 NOON Walk activities conclude
Walk Route:
The 2012 National Walk for Epilepsy is slightly over 2 miles. The start line is located on the gravel path near 14th Street between Madison and Jefferson Drives on the National Mall.
Transportation
Plane:
Three major airports link Washington, D.C. with the rest of the country, Ronald Reagan National Airport, Washington Dulles International Airport, and Baltimore-Washington International Airport. All of the airports have limo, and cab services available that will connect with the National Mall.
Train:
Check AMTRAK to see if it goes to Washington, D. C. from your area.
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Washington Metropolitan Area Transit Authority
The Metro rail stops at Ronald Reagan National Airport.
Car:
Interstate 395 provides access to the Mall from the south. Interstate 495, New York Avenue, Rock Creek Parkway, George Washington Memorial Parkway, and the Cabin John Parkway provide access from the North. Interstate 66, U.S. Route 50 and 29 provide access from the West. U.S. Routes 50, 1, and 4 provide access from the East. There is limited handicapped parking at the Lincoln and FDR memorials. Parking is generally extremely scarce in Washington, DC.
Public Transportation:
There are several metro train routes from the suburban areas surrounding the city. Again, for more information on Metro rail and bus click on the Metro link below:
For more information about the 2013 Seventh Annual National Walk for Epilepsy please click on the link below.
http://giving.epilepsyfoundation.org/site/TR/Walk/walk?fr_id=1960&pg=entry
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"2012 Walking Miles for Epilepsy"
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| Eisenhower Park Bodie's Place |
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Get your calendar and mark this date:
Saturday, September 15, 2012
12:00 PM to 3:00PM
Join the Connecticut Epilepsy Advocates'
"2012 Walking Miles for Epilepsy"
This is another of the Connecticut Epilepsy Advocate's annual events to build Awareness about Epilepsy.
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Join us for our walk on the trail and food afterwards.
If you just want to join us and not walk that is fine too. Food and drinks will be served until we run out. You will enjoy hours of fun and help people with Epilepsy.
Join us at:
Eisenhower Park
725 North Street
(Connecticut Route 121)
Milford, Connecticut
Free parking
(Rain date: Sunday, September 16, 2012)
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General Donations of any amount are truly appreciated
Entry fee: $20.00 per person
Registration forms and flyers are available below as a PDF
Please submit registration and payment no later than
September 1, 2012 to:
Connecticut Epilepsy Advocate, Inc.
20 Salem Walk
Milford, CT 06460-7132
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LGS Foundation 4th annual Wine Fundraiser
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Please support the LGS Foundation at our 4th annual Wine Fundraiser in Long Island, NY
The LGS Foundation is the leading organization in the United States, and the world, dedicated to raising awareness of Lennox-Gastaut Syndrome (LGS), funding research and providing support and services to patients living with Lennox-Gastaut Syndrome.
Much of the LGS Foundation’s programs and services are dependent on funds raised from our annual wine fundraiser. This year, the event will be held at Palmer Vineyards on Saturday, June 9, 2012 from 6:30PM until 9:30PM
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TICKETS: each ticket includes admission, dinner, and wine
ADVANCED TICKET: Purchase online or via check between May 2, 2012 - June 9, 2012: $60.00
DOOR TICKET: Purchase on day of event: $65.00
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| Sarah Morgan Fradkin |
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The S4 Epilepsy Walk, Dinner and Silent Auction will be a memorable day for everyone involved. Registration and check in will begin at 1:04PM on Saturday June 9, 2012. All of the information about the S4 Epilepsy Walk, Dinner and Silent Auction is available on their web site:
www.s4epilepsywalk.com
Please pre-register by clicking on the Register Here:
www.cureepilepsy.org/s4
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The 2.74 mile walk starts and ends at Ballantine Park and will take us through the beautiful town of Southbury, CT. The fun continues once the walk is finished. There is a tentative schedule of events below. We are hoping for a good old fashioned day at the park with games, food, music and socializing with family and friends. Bring a blanket to lay out in the sun or bring your tennis rackets and play for fun.
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Tentative Schedule (Rain or Shine)
1:04: Register, receive wristband and S4 gear. Sign up to win a car. Raffle tickets.
2:24: S4 Video. Sarah Welcome and National Anthem.
2:44: 2.74 mile walk begins.
4:00 - 8:04: Enjoy Family Time & Get in the Game with Tennis, Volleyball, Horse Shoes, Bocce, Basketball, Kick Ball, Junk Ball
4:17: Silent Auction Begins
4:34 - 6:34: Basketball shots to win a car (courtesy of County Line Nissan), Golf putting contest to win prizes (courtesy of Metro Grass)
5:44: Dinner
6:44: Ball Drop
7:04: Dessert
7:17: Silent Auction closes
7:44: Closing Announcements
8:04: Where will the fun continue?!?
Please make all checks payable to S4 Cure Epilepsy and sent to
S4 Cure Epilepsy
PO Box 521
Southbury, CT 06488-0521
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| Strike Out Epilepsy 2012 |
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Get your calendar and mark this date:
Sunday, April 22, 2012
12:00 PM to 3:00 PM
Join the Connecticut Epilepsy Advocates'
"Strike Out Epilepsy"
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This is one of Connecticut Epilepsy Advocate's annual events to build Awareness about Epilepsy. You can have up to six people per lane.
Pizza and soda will be served at each lane. You will enjoy hours of bowling and help people with Epilepsy, their family members and friends living with Epilepsy.
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Join us at:
Milford Lanes
1717 Boston Post Road Milford, Connecticut
General Donations of any amount are truly appreciated.
Entry fee: $30.00 per person
Sponsorship: $200.00 for a Business Banner above Bowling Lanes
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You can register on line and your payment can be sent via PayPal
on our Payments & Donations page
www.ct-ea.org/paymentsdonations.html
Registration forms and flyers are available below as a PDF
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Please submit registration and payment
no later than
Friday, April 6, 2012 to:
Connecticut Epilepsy Advocate, Inc.
20 Salem Walk
Milford, CT 06460-7132
Why not sponsor a lane?
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2012 Sixth Annual National Walk for Epilepsy
The National Walk for Epilepsy® is a family oriented, noncompetitive walk in our nation's capital to raise awareness and funds to continue the fight to stop seizures, find a cure and overcome the challenges created by epilepsy. Help make a difference by registering today.
Please join everyone on the National Mall in Washington, DC on Saturday March 31, 2012 and enjoy a morning full of activities for the entire family.
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Schedule of Events
Walk Schedule
Friday March 30, 2012
12:00 NOON - 5:00 PM Late registration and t-shirt pick-up
Check back for the location of late registration
Saturday March 31, 2012
7:30 AM - 9:00 AM Late registration
14th Street and Jefferson Drive - adjacent to the National Mall
8:30 AM Pre-Walk Rally (stage on the National Mall)
9:00 AM National Walk for Epilepsy begins
12:00 NOON Walk activities conclude
Walk Route
The 2012 National Walk for Epilepsy is slightly over 2 miles. The start line is located on the gravel path near 14th Street between Madison and Jefferson Drives on the National Mall.
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Transportation
Plane:
Three major airports link Washington, D.C. with the rest of the country, Ronald Reagan National Airport, Washington Dulles International Airport, and Baltimore-Washington International Airport. All of the airports have limo, and cab services available that will connect with the National Mall.
Train:
Check AMTRAK to see if it goes to Washington, D. C. from your area.
www.amtrak.com
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Washington Metropolitan Area Transit Authority
The Metro rail stops at Ronald Reagan National Airport.
www.wmata.com
Car:
Interstate 395 provides access to the Mall from the south. Interstate 495, New York Avenue, Rock Creek Parkway, George Washington Memorial Parkway, and the Cabin John Parkway provide access from the North. Interstate 66, U.S. Route 50 and 29 provide access from the West. U.S. Routes 50, 1, and 4 provide access from the East. There is limited handicapped parking at the Lincoln and FDR memorials. Parking is generally extremely scarce in Washington, DC.
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"2011
Walking Miles for Epilepsy"
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It is now official. - "Walking Miles for Epilepsy" will take place on Sunday, September 25, 2011-the very next day. Same time, Same place.
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| Eisenhower Park Bodie's Place |
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Get your calendar and mark this date:
Saturday, September 24, 2011
12:00 PM to 3:00PM
Join the Connecticut Epilepsy Advocates'
"2011 Walking Miles for Epilepsy"
This is another of the Connecticut Epilepsy Advocate's annual events to build Awareness about Epilepsy.
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Join us for our walk on the trail and food afterwards. If you just want to join us and not walk that is fine too. Food and drinks will be served until we run out. You will enjoy hours of fun and help people with Epilepsy. Join us at: Eisenhower Park
725 North Street
(Connecticut Route 121)
Milford, Connecticut
Free parking (Rain date: Sunday, September 25, 2011)
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General Donations of any amount are truly appreciated
Entry fee: $20.00 per person
Registration forms and flyers are available below as a PDF
Please submit registration and payment no later than
September 7, 2011 to:
Connecticut Epilepsy Advocate, Inc.
20 Salem Walk
Milford, CT 06460-7132
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Chelsea's Walk for SUDEP Awareness - Littleton, Colorado
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Join us as we walk to raise SUDEP* Awareness (*Sudden Unexplained Death in Epilepsy) on Sunday, September 25, 2011 at Clement Park in Littleton, Colorado. Walk in honor of or memory of those affected by Epilepsy. If you can't walk, consider supporting us by being a virtual walker and receive an event t-shirt.
Register at: www.CHFSUDEPWalk.CharityHappenings.org
Location: Clement Park
7306 West Bowles Avenue, Shelters 4 and 6
Littleton, CO 80123-3048
8:00 - 11:30 (Walk begins at 9:00)
When: September 25th, 2011 8:00 AM through 11:30 AM
Contact:
(303) 250-7739
chelseaslegacy@aol.com
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The LGS Foundation will be hosting their third annual wine-reception fund raiser
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On June 11, 2011, the LGS Foundation will be hosting their third annual wine-reception fund raiser at Palmer Vineyards, centrally located in the Long Island wine region. Palmer produces a full range of varietals including reds, whites, fruit wines and sparkling wines. Plesae click on the link for full information: www.lgsfoundation.org/winetickets.html
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A new date has been set for
"Strike out Epilepsy"
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| Strike Out Epilepsy |
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Get your calendar and mark this date:
Sunday, May 22, 2011
12:00 PM to 3:00 PM
Join the Connecticut Epilepsy Advocates'
"Strike Out Epilepsy"
This is one of Connecticut Epilepsy Advocate's annual events to build Awareness about Epilepsy. You can have up to six people per lane. Pizza and soda will be served at each lane. You will enjoy hours of bowling and help people with Epilepsy, their family members and friends living with Epilepsy.
Join us at one of these two locations:
Rip Van Winkle Lanes
701 Connecticut Avenue Norwalk, Connecticut
Milford Lanes
1717 Boston Post Road Milford, Connecticut
General Donations of any amount are truly appreciated.
Entry fee: $30.00 per person
Sponsorship: $200.00 for a Business Banner above Bowling Lanes
Registration forms and flyers are available below as a PDF in the Document Library
Please submit registration and payment no later than
May 13, 2011 to:
Connecticut Epilepsy Advocate, Inc.
20 Salem Walk
Milford, CT 06460-7132
Why not sponsor a lane?
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The Connecticut Epilepsy Advocate, Inc. is a recognized
501 (c) (3) Non-Profit Organization
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Gia’s Hope - 3rd Annual Benefit for C.U.R.E.
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Gia's Hope
3rd Annual Benefit for C.U.R.E.
Saturday, May 21, 2011
4:00 PM to 8:00 PM
Napper Tandy's Irish Pub
275 Route 25A
Miller Place, New York 11764-2417
Music
Full Buffet Dinner & Dessert
by Upper Crust Foods
2 Hours of Beer, Wine and Soda
Kids under 12 are free!
For tickets, donations and more information please contact Wendy Flammia at: (631) 433-0097 or: giashope@gmail.com
Plesae visit their web site: www.giashope.com
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2011 Fifth Annual National Walk for Epilepsy
Schedule of Events
Saturday, March 26, 2011
12:Noon - 5:00PM - Check back for details on late registration and t-shirt pick-up
Sunday, March 27, 2011
7:30AM - 8:30AM - Maryland Avenue - adjacent to the National Mall
8:30AM - Pre-Walk Rally (stage on the National Mall)
9:00AM - National Walk for Epilepsy begins
12:Noon - Walk activities conclude
Walk Route
The 2011 National Walk for Epilepsy is slightly over 2 miles. The start line is located on the gravel path at 4th Street between Madison and Jefferson Drives on the National Mall.
Transportation
Plane:
Three major airports link Washington, D.C. with the rest of the country, Ronald Reagan National Airport, Washington Dulles International Airport, and Baltimore-Washington International Airport. All of the airports have limo, and cab services available that will connect with the National Mall.
Train:
Check AMTRAK to see if it goes to Washington, D. C. from your area.
www.amtrak.com
Washington Metropolitan Area Transit Authority
The Metro rail stops at Ronald Reagan National Airport.
www.wmata.com
Car:
Interstate 395 provides access to the Mall from the south. Interstate 495, New York Avenue, Rock Creek Parkway, George Washington Memorial Parkway, and the Cabin John Parkway provide access from the North. Interstate 66, U.S. Route 50 and 29 provide access from the West. U.S. Routes 50, 1, and 4 provide access from the East. There is limited handicapped parking at the Lincoln and FDR memorials. Parking is generally extremely scarce in Washington, DC.
Public Transportation:
There are several metro train routes from the suburban areas surrounding the city. Again, for more information on Metro rail and bus click on the Metro link below:
www.wmata.com
For more information on the 2011 Fifth Annual National Walk for Epilepsy please click on the link below.
http://efa.convio.net/site/PageServer?pagename=indexnew
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Ciara's Butterfly Bash 2011
Ciara's Butterfly Bash, A Benefit for Children with Dravet Syndrome
Our annual signature event where we raise funds for research while honoring a professional who has gone above and beyond in the field of Dravet syndrome and related conditions. This formal event features a dinner, dancing, and silent and live auctions. Attend to show your support; consider becoming an event sponsor; or contribute items for the live auction such as airline tickets, vacation homes, electronics, or jewelry.
The 2011 Butterfly Bash will take place on Saturday, March 26, 2011 from 6:30PM to 11:30 PM, at the Hyatt Regency Greenwich. This year's gala honorees are Nancy and Jim Abrahams, co-founders of The Charlie Foundation To Cure Pediatric Epilepsy.
Join us for a Red Carpet themed evening featuring live music and dancing to the band Hot House.
Your generous support can truly make a difference in the lives of the children affected by Dravet syndrome. Please join us on the evening of Saturday, March 26, 2011 to offer these children and their families the hope of a brighter future.
Please visit our web site: www.dravetfoundation.org
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The two part interview for November is National Epilepsy Awareness Month will be on W-PLR-99.1 FM and W-EZN-Star 99.9 FM
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John Voket was kind enough to do a two part interview about November is National Epilepsy Awareness Month. This is the fifth year John has helped to make his many listeners become “Aware About Epilepsy”.
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In part one John will interview Robert J. Mittan, Ph.D.
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Dr. Mittan has been helping people with epilepsy and their families. He is recognized as one of the foremost epilepsy educators in the world. His work helping others has earned many awards and his research on epilepsy has resulted in new and important discoveries. Part one will air Sunday, November 21, 2010 and it will be available on line until Saturday, November 27, 2010 at midnight.
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In part two John will interview Leila Demetrovits.
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Leila and I truly enjoyed doing the interview wih John. Part two will air Sunday, November 28, 2010 and it will be available on line until Saturday, December 4, 2010 at midnight.
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"The Public File" with John Voket
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| Star 99.9 FM |
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STAR 99.9's talk radio show features non-profit organizations and community leaders who are concerned with community involvement and informing the public of important issues and events.
Listen to John Voket, the show's host, chatting with community leaders and non-profit organizations about important community issues and events. The show airs on Sunday from 6:00 AM to 7:00 AM
http://star999.com/inside/sundaymorningreport.html
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"For the People" with John Voket
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Our award-winning public affairs program, "For the People" is hosted and produced by John Voket. The show airs on Sunday from 7:00 AM to 8:00 AM
Each week the program features several segments and announcements focusing on critical issues in our communities; and provides information about the organizations and initiatives that help to address those concerns.
http://wplr.com/features/for-the-people.html
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Connecticut Epilepsy Advocates'
"Strike Out Epilepsy" 2011
We regret that due to a conflict in scheduling the “Strike Out Epilepsy” bowling event has been postponed to a later date. We apologize and hope you will be able to join us when we announce the new date. We appreciate your continued support.
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First Annual Chelsea's SUDEP Awareness Walk
The First Annual Chelsea's SUDEP Awareness Walk will be held on September 26, 2010 at 7:30 AM at Clement Park 7306 West Bowles Avenue Littleton, Colorado.
For those of you who might not know about SUDEP it is: Sudden Unexplained Death in Epileptic Patients
The Chelsea Hutchison Foundation is a Colorado non-profit foundation formed in loving memory of our precious daughter Chelsea. On April 19, 2010, Chelsea died very unexpectedly after having a seizure in her sleep. No one ever told us a seizure could take her life. The Chelsea Hutchison Foundation is designed to help people living with Epilepsy assisting them to live more independent lives. Funds raised by this Foundation will go toward helping to provide seizure-response dogs to those in need, to educate the public about SUDEP, and provide support to those who have been affected by SUDEP.
Hope to see you at the walk!
Julie Hutchison, President
The Chelsea Hutchison Foundation
10060 Matthew Lane
Highlands Ranch, CO 80130-8043
(303) 250-7739
www.ChelseaHutchisonFoundation.org
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Dravet Syndrome Foundation Steps Toward a Cure
The Dravet Syndrome Foundation will be having their Steps Towards a Cure Walk in eight States this year. Their yearly walk is a fun, family-friendly event, taking place at various locations across the United States. Here are the dates and locations:
Saturday, September 18, 2010
Lincoln, Rhode Island
Saturday, September 25, 2010
Carmi, Illinois
Schaumburg, Illinois
Toledo, Ohio
Hazleton, Pennsylvania
Tega Cay, South Carolina
Frisco, Texas
Sunday, September 26, 2010
Simsbury, Connecticut
Saturday, October 2, 2010
Flint, Michigan
For further information please click on the link below:
www.dravetfoundation.org/walk_for_a_cure.html
Or contact:
Dravet Syndrome Foundation
11 Nancy Drive
Monroe, CT 06468-3218
(203) 880-9456
info@dravetfoundation.org
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IDEA League 2010 Family Conference
The IDEA League is proud to announce their 2010 Family Conference to be held Thursday, August 26, 2010 through Sunday, August 29, 2010. The conference will bring together leading experts to share information relative to recent advances in laboratory and therapeutic approaches for Dravet Syndrome and other related forms of pediatric Epilepsy. It will be held at the:
Hyatt Regency Greenwich
1800 East Putnam Avenue
Old Greenwich, CT 06870-1320
(203) 637-1234
Registrations must be made on line in advance. For further information please click on the link below:
www.idea-league.org/civicrm/event/info?id=8&reset=1
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Sara's 5th Annual Walk for Epilepsy
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Sara-Elizabeth Clark, itsnotwhoiam.com and the Epilepsy Foundation of Northeastern New York would like to invite you to support Sara's 5th Annual Walk for Epilepsy and Sara's 5K Sprint for Epilepsy being held on Sunday, June 6, 2010, at The State University of New York at New Paltz (SUNY).
For further information please click on the link below:
www.itsnotwhoiam.com
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The LGS Foundation's Second Annual Wine Reception Fundraiser
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The LGS Foundation's Second Annual Wine Reception Fundraiser will be held at Martha Clara Vineyards on Saturday, May 8, 2010 6:30 PM to 9:30 PM
Join us for wine and Hors d'oeuvers as we celebrate our commitment to providing international support for those affected by Lennox Gastaut syndrome, while raising funds to help pursue additional research, services and programs for LGS families.
Tickets are $55.00 per person if purchased before May 8, 2010. For more information or to purchase tickets, go to:
www.lgsfoundation.org/wine
Martha Clara Vineyards
6025 Sound Avenue
Riverhead, New York 11901-5612
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2010 Fundraiser for Gia's Hope
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The 2010 Fundraiser for Gia's Hope will be held on Sunday, June 13, 2010 from 1:00PM to 5:00PM at the Miller Beach Surf Club. All proceeds go to CURE (Citizens United for Research in Epilepsy). For tickets along with other information about this fundraising event please call: (631) 433-0097 or e-mail them at:
giashope@gmail.com
Miller Beach Surf Club
23 Harbor Beach Road
Miller Place, NY 11764-1448
www.giashope.com
www.cureepilepsy.org
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Ciara's Butterfly Bash
Our annual signature event where we raise funds for research while honoring a professional who has gone above and beyond in the field of Dravet syndrome and related conditions. This formal event features a dinner, dancing, and silent and live auctions. Attend to show your support; consider becoming an event sponsor; or contribute items for the live auction such as airline tickets, timeshare stays, electronics, or jewelry.
The 2010 Butterfly Bash will take place on Saturday, March 27, from 6:30-11:30 PM, at the Hyatt Regency Greenwich, and will include a silent auction, dinner, and dancing; formal attire is requested.
Host: Michael Rinn
Auctioneer: Peter Hopkins
Honoree: Dr. Linda Laux
Join us for a Mardi Gras celebration featuring New Orleans jazz music with Renard Boissiere and dancing to the band Hot House.
Click on the links below for further information, or purchase a ticket.
Your generous support can truly make a difference in the lives of the children affected by Dravet syndrome. Please join us on the evening of Saturday, March 27, to offer these children and their families the hope of a brighter future.
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Third Annual Kimberley Piercy Memorial Pasta Dinner
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Kim's Crabapple Project is proud to announce the Third Annual Kimberley Piercy Memorial Pasta Dinner to Benefit The National Walk for Epilepsy. Join them Friday, March 5, 2010-5:00 PM to 9:00 PM at the Courtyard by Marriott 63 Grand Street Waterbury, Connecticut
For registration and for further information please contact: Hedy Kelley (860) 299-3409 or Tammy and Frank Piercy (860) 201-5303
www.kimscrabappleproject.org
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2010 Fourth Annual National Walk for Epilepsy
Schedule of Events
Friday March 26, 2010
2:30 PM - 6:30 PM - Check back for details on late registration and t-shirt pick-up
Saturday March 27, 2010
7:30 AM - 8:30 AM - Check back for details on late registration and t-shirt pick-up
8:30 AM - Pre-Walk Rally (stage on the National Mall)
9:00 AM - National Walk for Epilepsy begins
12: Noon - Walk activities conclude
Walk Route
The 2010 National Walk for Epilepsy is slightly over 2 miles. The start line is located at 7th Street and Jefferson Drive on the National Mall. Check back to view the route.
Transportation
Plane:
Three major airports link Washington, D.C. with the rest of the country, Ronald Reagan National Airport, Washington Dulles International Airport, and Baltimore-Washington International Airport. All of the airports have limo, and cab services available that will connect with the National Mall.
Train:
Check AMTRACK to see if it goes to Washing, D. C. from your area.
www.amtrak.com
Washington Metropolitan Area Transit Authority
The Metro rail stops at Ronald Reagan National Airport.
www.wmata.com
Car:
Interstate 395 provides access to the Mall from the south. Interstate 495, New York Avenue, Rock Creek Parkway, George Washington Memorial Parkway, and the Cabin John Parkway provide access from the North. Interstate 66, U.S. Route 50 and 29 provide access from the West. U.S. Routes 50, 1, and 4 provide access from the East. There is limited handicapped parking at the Lincoln and FDR memorials. Parking is generally extremely scarce in Washington, DC.
Public Transportation:
There are several metro train routes from the suburban areas surrounding the city. Again, for more information on Metro rail and bus click on the Metro link below:
www.wmata.com
Visitor parking is available along Ohio Drive between the Lincoln and Jefferson Memorials. Bus parking is primarily available along Ohio Drive near the Lincoln and Jefferson Memorials.
For more information on the 2010 Fourth Annual National Walk for Epilepsy please click on the link below.
http://efa.convio.net/site/PageServer?pagename=indexnew
Your local CVS/pharmacy is partnering with Epilepsy Advocate to bring you this FREE event, where you will meet:
An Epilepsy Advocate: Someone like you, living well with epilepsy and wanting to share their experiences with you!
The Canine Assistants: An innovative program training seizure response dogs for those that need them!
Your local CVS pharmacist: Always with your best health in mind, your pharmacist will be there to help you learn more about seizure medication.
When you are there please say HI to Debbie C. and let her and the sponsors of this event know you heard about this on the Connecticut Epilepsy Advocate web site.
The First one will be on Wednesday, December 9, 2009 from 3:00PM to 6:00PM at the:
CVS/pharmacy
8 East Washington Street
North Attleboro, Massachusetts 02760-2314
The Second one wil be on Thursday, December 10, 2009 from 3:00PM to 6:00PM at the:
CVS/pharmacy
136 Nahatan Street
Norwood, Massachusetts 02062-4252
Don't miss this opportunity to learn more about epilepsy! Bring a friend, as well as your questions! Please click on the htm below to see the one in North Attleboro, Massachusetts for all information.
Epilepsy_Canine_Assistants.htm
Again, the Second one wil be on Thursday, December 10, 2009 from 3:00PM to 6:00PM at the CVS/pharmacy 136 Nahatan Street in Norwood, Massachusetts
The November Is Epilepsy Awareness Month interview that aired on W-PLR-99.1 FM and on W-EZN-Star 99.9 FM
If you happened to miss either one of them, they will be available on line until Saturday, December 5, 2009 at midnight.
The Public File
STAR 99.9's talk radio show features non-profit organizations and community leaders who are concerned with community involvement and informing the public of important issues and events.
Listen to John Voket, the show's host, chatting with community leaders and non-profit organizations about important community issues and events. The show airs on Sunday from 6:00 AM to 7:00 AM
http://star999.com/inside/sundaymorningreport.htm
For the People with John Voket
Our award-winning public affairs program, For the People is hosted and produced by John Voket. The show airs on Sunday from 7:00 AM to 8:00 AM
Each week the program features several segments and announcements focusing on critical issues in our communities; and provides information about the organizations and initiatives that help to address those concerns.
http://wplr.com/features/for-the-people.html
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Self Expression:
Epilepsy can be viewed as a medical overture however the arpeggio of electrical impulses makes your heart beat faster until the closing act comes to fruition.
Robert A. Fiore,
Connecticut Epilepsy Advocate
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